[{"innerBlocks":[],"name":"core\/freeform","postId":2385,"blockType":{"name":"core\/freeform","keywords":[],"attributes":{"content":{"type":"string","source":"raw"},"lock":{"type":"object"}},"providesContext":[],"usesContext":[],"selectors":[],"supports":{"className":false,"customClassName":false,"reusable":false},"styles":[],"variations":[],"apiVersion":3,"title":"Classic","description":"Use the classic WordPress editor.","category":"text"},"originalContent":"A pilot leveraging HL7\u2019s emerging Fast Healthcare Interoperability Resources (FHIR) standard and OAuth 2.0 security profiles to enable patients to access their electronic health record data and share it with researchers will get underway later this month.

Four major EHR vendors\u2014Allscripts, Cerner, eClinicalWorks and Epic\u2014have put the technology into production and made it available at 13 healthcare provider sites across the country for use by a total of 1,300 patients as part of the pilot.

Putting patients at the center of deciding when and how EHR data should flow is the goal of the Sync for Science (S4S) pilot, coordinated by Harvard Medical School\u2019s Department of Biomedical Informatics, the National Institutes of Health and the Office of the National Coordinator for HIT.

S4S is meant to provide a streamlined user experience for donating data from any EHR system by leveraging two open standards: FHIR to represent clinical data and OAuth 2.0 for authorization. Each of the four vendors supporting these standards has a place in their respective patient portals where patients can sign in and make the decision to either share data or revoke sharing.

\u201cWith the click of a button, you can share your health data with a research app of your choice or with a research study that you want to support,\u201d said Josh Mandel, MD, health IT ecosystem lead at Verily, during an education session on Thursday at the HIMSS18 conference in Las Vegas. \u201cWhat we really want is an electronic workflow that helps patients opt in to this kind of data sharing in a very explicit way and in a low friction way.\u201d

Also See<\/b>: Apps to enable patients to access their EHRs, share with researchers<\/a>

S4S is supporting the NIH Precision Medicine Initiative\u2019s All of Us research program, whose goal is to recruit one million or more Americans to participate in a national cohort and contribute their health information including EHR data. However, S4S is creating a patient-mediated digital workflow that will potentially benefit other research programs and broader data sharing use cases, contends Mandel.

\u201cThe big picture in this pilot is we\u2019re working with the All of Us research program\u2014they\u2019ve got a consumer app that they\u2019ve built,\u201d he said.

According to Mandel, his team hopes to learn from the S4S pilot \u201chow easily consumers get through this workflow and if there\u2019s any places they get stuck either for technical reasons or for social reasons.\u201d

Mandel, who has been working on the project with a team at Harvard Medical School since 2016, noted that the initial focus of S4S is on ONC\u2019s Common Clinical Data Set which includes a list of elements such as demographics, immunizations, lab results, medications, problem lists, and vital signs. He added that future phases of S4S will offer methods for sharing other data types, including financial and imaging data.","saveContent":"A pilot leveraging HL7\u2019s emerging Fast Healthcare Interoperability Resources (FHIR) standard and OAuth 2.0 security profiles to enable patients to access their electronic health record data and share it with researchers will get underway later this month.

Four major EHR vendors\u2014Allscripts, Cerner, eClinicalWorks and Epic\u2014have put the technology into production and made it available at 13 healthcare provider sites across the country for use by a total of 1,300 patients as part of the pilot.

Putting patients at the center of deciding when and how EHR data should flow is the goal of the Sync for Science (S4S) pilot, coordinated by Harvard Medical School\u2019s Department of Biomedical Informatics, the National Institutes of Health and the Office of the National Coordinator for HIT.

S4S is meant to provide a streamlined user experience for donating data from any EHR system by leveraging two open standards: FHIR to represent clinical data and OAuth 2.0 for authorization. Each of the four vendors supporting these standards has a place in their respective patient portals where patients can sign in and make the decision to either share data or revoke sharing.

\u201cWith the click of a button, you can share your health data with a research app of your choice or with a research study that you want to support,\u201d said Josh Mandel, MD, health IT ecosystem lead at Verily, during an education session on Thursday at the HIMSS18 conference in Las Vegas. \u201cWhat we really want is an electronic workflow that helps patients opt in to this kind of data sharing in a very explicit way and in a low friction way.\u201d

Also See<\/b>: Apps to enable patients to access their EHRs, share with researchers<\/a>

S4S is supporting the NIH Precision Medicine Initiative\u2019s All of Us research program, whose goal is to recruit one million or more Americans to participate in a national cohort and contribute their health information including EHR data. However, S4S is creating a patient-mediated digital workflow that will potentially benefit other research programs and broader data sharing use cases, contends Mandel.

\u201cThe big picture in this pilot is we\u2019re working with the All of Us research program\u2014they\u2019ve got a consumer app that they\u2019ve built,\u201d he said.

According to Mandel, his team hopes to learn from the S4S pilot \u201chow easily consumers get through this workflow and if there\u2019s any places they get stuck either for technical reasons or for social reasons.\u201d

Mandel, who has been working on the project with a team at Harvard Medical School since 2016, noted that the initial focus of S4S is on ONC\u2019s Common Clinical Data Set which includes a list of elements such as demographics, immunizations, lab results, medications, problem lists, and vital signs. He added that future phases of S4S will offer methods for sharing other data types, including financial and imaging data.","order":0,"get_parent":{},"attributes":[],"attributesType":{"content":{"type":"string","source":"raw"},"lock":{"type":"object"}},"dynamicContent":""}]

Pilot to recruit patients to share EHR data with researchers

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